Sunday, August 29, 2021

Walk to End Epilepsy event on Sept 12 to raise funds for local efforts

Maria Lutz speaking about her experiences with epilepsy

Join community members on September 12 at the Arrowhead Park in Inlet or wherever you choose in support of the programs and services the Epilepsy Foundation of Northeastern New York

The Lutz Family is coordinating this walk in Inlet NY and is walking in support of their daughter and sister, Maria (pictured here at a recent Make a Wish event), who was diagnosed with epilepsy at age 12.  Now 17, Maria will be heading off to college this fall.

Read about Maria’s story here.

Event proceeds will remain local and help fund the programs and services the Epilepsy Foundation of Northeastern New York provides to people affected by epilepsy in our community. Services include information and referral, service coordination, counseling, support groups, education and first-aid training, medications for those unable to afford them, and advocacy.

No registration fee!  Sign up here

Maria and Bonnie Lutz

A special wish

Rather than wish for something for herself, Lutz, a Make-A-Wish Northeast New York wish teen from Hamilton County wished to help others with epilepsy secure life-changing medication.

Lutz announced her wish recently at a news conference outside the offices of Make-A-Wish Northeast New York and the Epilepsy Foundation of Northeastern New York, which coincidentally share a building in Albany.

There are five categories of Make-A-Wish wishes. “I wish to have,” “I wish to go,” “I wish to meet” and “I wish to be” are the most common. The fifth, “I wish to give back” – the kind of wish Maria chose – is the rarest.

Her wish starts a dedicated $10,000 fund to be administered by the Epilepsy Foundation of Northeastern New York that will help families in the 22 counties it serves obtain vital medications.

“I could never imagine what it would be like if I couldn’t afford the costs of seizure medication,” Lutz wrote in a first-person account of her wish, which can be found at mariaepilepsyfund.org. “I wanted to use this opportunity to make a change and help people just like me.

“My wish was to create a dedicated fund within the Epilepsy Foundation of Northeastern New York that will help people with epilepsy pay for medication,” she continued. “The No. 1 reason for skipping doses is cost. I want to individually help others and possibly even change their life with this fund to help raise money and also awareness. The Maria’s Epilepsy Medication Emergency Fund will help raise awareness and money for people who are struggling to afford seizure medication.”

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